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“So; Aren’t Epilepsy And Autism Brain Diseases?”
If I had a penny for every time I’d been asked this question I would own the Bahamas and perhaps Singapore by now. I am always shocked by the level of ignorance when it comes to neurological...
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And So It Begins
Long ago, in my early twenties, my grandmother and I used to meet for lunch on a weekly basis. We would set the world to rights, catch up with each other and I’d tell her about my job. She always used...
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Overexcitement: Catalyst Or Symptom?
For a person who is both epileptic and autistic, it is very difficult to separate and analyse behaviours that might be due to one or the other or even both. Am I having a seizure because I’ve also...
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I Have Epilepsy. I Am Not Crazy
Over the years I have heard some truly ridiculous theories – and even phobias – concerning epilepsy. All of those ridiculous statements concerning radiation, or a troubled pregnant mother and whatever...
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Autism In Adulthood
To many people I’m the bubbly, friendly, excitable and somewhat eccentric lady who knows how to let go and have fun. I have plenty of friends, I’m a gifted writer and I’m talented in the arts of...
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Autism: I’m Not Crazy, But Sometimes My Brain Skips A Beat
Appearances can be deceptive. Outwardly, to the bystander, I’m the smiling, friendly blonde lady who is confident in herself and still retains an appearance of youthfulness and some of the good looks...
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Sexuality And Disability
In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide...
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“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”
That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to a...
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How I Saved A Life
Disclaimer: This piece is not about blowing my own trumpet. I am writing this to prove a point – that people with disabilities can still make an important contribution to society. Colin Brewer,...
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Epileptic Wave
As I sleep it lifts me up Jostling me into wakefulness Calm at first, a gentle rise and fall Almost peaceful, and yet disturbed The first wave buffets me, not too strongly It carries me with it...
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The Fall Of An Epileptic
Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their...
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Turning Japanese And Cross-Stitch Flowers
I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to sleep on my left...
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Stubborn
Once upon a time, many years ago, my grandmother declared that I was so stubborn that I would even defy death until I was good and ready to turn up my toes. She was right, actually; there have been a...
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Epilepsy: Don’t Let It Eat You
The oncoming storm The title I’ve selected for this blog is something that I said during a film interview. I am unable to share the video here because I’ve not yet received permission, but it was a...
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Frank La Rocca, Epilepsy Nurse
This blog post is actually not about Frank La Rocca at all – more about my visit with the neurologist today – but since his name is always amongst “Top Searches” on my dashboard and I received a...
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“You Should Get A Job…”
“… And then you’d be getting paid for something worthwhile complaining about.” I looked at her; a pretty woman with blonde hair, a stinky attitude and a smug expression on her face. I stand some inches...
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Staring Without Seeing, And Other Stories
That’s what I tend to do when I’m waiting for my hospital appointments; I have my Kindle, of course, but occasionally my gaze will sweep the waiting area and see – but not see. Images are vaguely noted...
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